UCSD Has Not Told Women With HIV Of Data Breach, Despite Researchers’ Pleas

guest · May 15, 2019

UCSD Has Not Told Women With HIV Of Data Breach, Despite Researchers’ Pleas
May 15, 2019
https://www.kpbs.org/news/2019/may/15/ucsd-has-not-told-women-hiv-data-breach-despite-re/

University of California, San Diego officials stonewalled attempts to notify women in an HIV research study that their confidential data was breached more than seven months ago, an inewsource investigation has found.

According to university records, the breach occurred when Christie’s Place managers intentionally stored all study information in a database it uses to track patients receiving clinical care, which can be accessed by anyone at the nonprofit, allegedly to “inflate” their patient numbers and bill San Diego County for more services. Christie’s Place denied that allegation.

In a statement, UCSD told inewsource it is working on contacting the research subjects, a process it said will begin in about one to three weeks. It blamed the delays primarily on one administrator who was put on leave.
inewsource spoke with five experts in research ethics and data privacy for this story, who all agreed it has taken UCSD far too long to notify the women affected.

The county was not aware of the breach or the allegations about Christie’s Place’s billing practices until contacted by inewsource last Thursday.
Click to expand...

Log in or Sign up

UCSD Has Not Told Women With HIV Of Data Breach, Despite Researchers’ Pleas

guest Guest

Log in or Sign up

UCSD Has Not Told Women With HIV Of Data Breach, Despite Researchers’ Pleas

guest Guest

Useful Searches